Family-Centered Care and Sociodemographic Characteristics as Predictors of Caregiving Burden and Parental Self-Efficacy in Mothers of Infants With Congenital Heart Disease
Journal of Cardiovascular Nursing, 2026 (SCI-Expanded, SSCI, Scopus)
- Yayın Türü: Makale / Tam Makale
- Basım Tarihi: 2026
- Doi Numarası: 10.1097/jcn.0000000000001366
- Dergi Adı: Journal of Cardiovascular Nursing
- Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, CINAHL, EMBASE, MEDLINE, Psycinfo, Health Research Premium Collection (ProQuest)
- Anahtar Kelimeler: caregiver burden, congenital heart disease, family-centered care, mother, self-efficacy
- Bilecik Şeyh Edebali Üniversitesi Adresli: Evet
Özet
Background: – Congenital heart disease requires complex care, placing mothers at risk of high burden and low self-efficacy. Family-centered care (FCC), emphasizing collaboration with healthcare providers, may alleviate these challenges. However, its predictive role in the Turkish context remains underexplored. Methods: – This cross-sectional, descriptive correlational study included mothers of 131 children aged 0 to 2 years who were followed at a pediatric cardiac surgery unit. Data were collected using the FCC Scale, Zarit Caregiving Burden Scale, and Parental Self-Efficacy Scale. Analyses involved descriptive statistics, Pearson correlations, and multiple linear regression. Results: – Lower FCC perceptions were strongly associated with higher caregiving burden and lower parental self-efficacy. For caregiving burden, Model 1 explained 58.7% of the variance (adjusted R2 = 0.587; F(5, 82) = 25.718, P <.001). Significant predictors were extended family structure (β = 0.235, P =.002) and lower FCC perception (β = −0.744, P <.001). For parental self-efficacy, Model 2 explained 60.1% of the variance (adjusted R2 = 0.601; F(10, 78) = 14.231, P <.001). Significant predictors were urban residence (β = 0.189, P =.012), greater illness knowledge (β = 0.184, P =.019), and higher FCC perception (β = 0.643, P <.001). FCC emerged as the strongest predictor in both models. Conclusion: – Mothers’ perceptions of FCC emerged as a key determinant of caregiving outcomes, demonstrating a protective role by reducing burden and enhancing self-efficacy. Implication for Practice: – Integrating FCC into pediatric cardiology as a standard of care—through clear communication, tailored education, perioperative support, and telehealth for rural families—can promote maternal resilience, reduce caregiving stress, and improve child health outcomes.